Actively Recruiting
Study of Patients with Electrical Status Epilepticus in Sleep
Led by East Suffolk and North Essex NHS Foundation Trust · Updated on 2025-01-24
20
Participants Needed
1
Research Sites
28 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Our aims are: 1. To understand the diagnostic practices, treatment and long term management and outcomes for patients diagnosed with ESES locally. 2. To establish a regional and national guideline for the diagnosis and management of patients with ESES. The secondary questions that can be addressed with this case series review include the variability of clinical care given to patients with this condition, and for example, the duration of time it takes to obtain diagnostic tests and assessments by psychologists.
CONDITIONS
Official Title
Study of Patients with Electrical Status Epilepticus in Sleep
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Pediatric patients up to 16 years old managed for Electrical Status Epilepticus in Sleep or related encephalopathy at East Suffolk and North Essex NHS Foundation Trust within the last 15 years
- Patients must have available electronic health records
You will not qualify if you...
- Pediatric patients with epilepsy but without confirmed diagnosis of Electrical Status Epilepticus in Sleep or related encephalopathy
- Patients without electronic health records
- Patients over 16 years old
- Patients who have opted out of data use as per national opt-out policy
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
East Suffolk and North Essex NHS Foundation Trust
Colchester, United Kingdom
Actively Recruiting
Research Team
T
Thiloka Ratnaike
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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