Actively Recruiting

Phase 3
Age: 2Years +
All Genders
NCT05179876

A Study Providing Treatment Access in Participants With Pulmonary Hypertension Completing a Parent Study and Having no Other Option

Led by Actelion · Updated on 2026-05-08

280

Participants Needed

45

Research Sites

360 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The purpose of the study is to enable participants with pulmonary hypertension (PH) currently treated with study intervention(s) in a clinical study (parent studies \[NCT03422328, NCT03904693,NCT04565990, NCT02932410, NCT03492177, and NCT04175600\]), to continue to benefit from the intervention after closure of the parent study in case they have no alternative means of access to the study intervention. This study will allow assessment of the long-term safety of each study intervention.

CONDITIONS

Official Title

A Study Providing Treatment Access in Participants With Pulmonary Hypertension Completing a Parent Study and Having no Other Option

Who Can Participate

Age: 2Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Participant must sign an informed consent form (or their legally designated representative must sign) confirming understanding and willingness to participate
  • Participant treated with oral macitentan, selexipag, or macitentan/tadalafil fixed dose combination at the end of a sponsor parent study with pulmonary arterial hypertension indication
  • Participant has completed the parent study
  • No alternative access to study intervention or equivalent approved therapy is available
  • Participant may continue to benefit from the study treatment
  • Participant is at least 18 years old for macitentan/tadalafil fixed dose combination, and at least 2 years old for macitentan or selexipag
  • Female participants of childbearing potential must have a negative pregnancy test before treatment, agree to monthly pregnancy testing, and agree to use contraception until 30 days after last dose
  • For pediatric female participants, investigator must ensure appropriate counseling on contraception
Not Eligible

You will not qualify if you...

  • Participants who discontinued study intervention early in their parent study
  • Female participants who are pregnant, breastfeeding, or planning pregnancy during the study
  • Planned or current treatment with another investigational therapy
  • Known allergies, hypersensitivity, or intolerance to macitentan, selexipag, tadalafil, or their excipients
  • Hemoglobin less than 80 g/L (macitentan and macitentan/tadalafil specific)
  • Serum AST and/or ALT greater than 3 times upper limit of normal
  • Severe hepatic impairment (Child-Pugh Class C) documented
  • Selexipag-specific: suspected or known pulmonary veno-occlusive disease, uncontrolled thyroid disease, severe heart conditions, recent cerebrovascular events, or significant valvular defects unrelated to PH
  • Children on selexipag: suspicion of intussusception, ileus or gastrointestinal obstruction, or hemoglobin/hematocrit below 75% of lower limit
  • Macitentan/tadalafil fixed dose combination-specific: severe renal impairment with eGFR/creatinine clearance below 30 mL/min

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 45 locations

1

The Republican Scientific-Practical Center ''Cardiology''

Minsk, Belarus, 220036

Actively Recruiting

2

Minsk Regional Clinical Hospital Of The Red Banner Of Labor

Minsk, Belarus

Actively Recruiting

3

UZ Leuven

Leuven, Belgium, 3000

Completed

4

University Multiprofile Hospital for Active Treatment- UMHAT Sveta Anna AD

Sofia, Bulgaria, 1750

Actively Recruiting

5

Beijing Anzhen Hospital 1

Beijing, China, 100029

Actively Recruiting

6

Beijing Anzhen Hospital

Beijing, China, 100029

Actively Recruiting

7

The Second Xiangya Hospital of Central South Hospital

Changsha, China, 410011

Actively Recruiting

8

Jiangsu Province Hospital

Nanjing, China

Actively Recruiting

9

Qingdao Women and Children's Hospital

Qingdao, China, 266035

Actively Recruiting

10

Childrens Hospital of Shanghai

Shanghai, China, 200062

Actively Recruiting

11

The First Affiliated Hospital of Xian Jiaotong University

Xi'an, China, 710061

Actively Recruiting

12

Gottsegen György Országos Kardiológiai Intézet

Budapest, Hungary, 1096

Actively Recruiting

13

Klinika Kardiologii Z Oddzialem Intensywnego Nadzoru Kardiologicznego UM W Bialymstoku

Bialystok, Poland, 15 276

Actively Recruiting

14

Szpital Uniwersytecki nr 2 im dr Jana Biziela w Bydgoszczy, Klinika Kardiologii

Bydgoszcz, Poland, 85-168

Completed

15

SPSK nr 7 SUM w Katowicach Gornoslaskie Centrum Medyczne im Prof Leszka Gieca

Katowice, Poland, 40 635

Actively Recruiting

16

Oddzial Kardiologii Wojewodzki Szpital Specjalistyczny im W Bieganskiego

Lodz, Poland, 91 347

Actively Recruiting

17

Wojewodzki Szpital Specjalistyczny im Stefana Kardynala Wyszynskiego SPZOZ

Lublin, Poland, 20 718

Completed

18

SPSK2 PUM Klinika Kardiologii

Szczecin, Poland, 70 111

Actively Recruiting

19

Wojewodzki Szpital Specjalist Osrodek Badawczo Rozwojowy

Wroclaw, Poland, 51 124

Completed

20

Wojewodzki Szpital Specjalistyczny we Wroclawiu

Wroclaw, Poland, 51 124

Actively Recruiting

21

Scientific and Research Institution of Cardiovascular Diseases Complex Problems

Kemerovo, Russia, 650002

Completed

22

E.Meshalkin National Medical Research Center of the Ministry of Health of the Russian Federation

Novosibirsk, Russia, 630055

Actively Recruiting

23

Federal State Budgetary Institution

Saint Petersburg, Russia, 197341

Completed

24

Institute of Cardiology of Tomsk National Research Medical Center of Rus Academy of Sciences

Tomsk, Russia, 634012

Completed

25

Regional Clinical Hospital No1

Tyumen, Russia, 625000

Actively Recruiting

26

Abdullah, IA

Durban, South Africa, 4001

Completed

27

Dr Kalla

Lenasia, South Africa, 1820

Actively Recruiting

28

Chungnam National University Hospital

Daejeon, South Korea, 35015

Actively Recruiting

29

Gachon University Gil Medical Center

Incheon, South Korea, 21565

Actively Recruiting

30

Seoul National University Hospital 1

Seoul, South Korea, 03080

Actively Recruiting

31

Seoul National University Hospital

Seoul, South Korea, 03080

Actively Recruiting

32

Asan Medical Center

Seoul, South Korea, 05505

Actively Recruiting

33

Samsung Medical Center

Seoul, South Korea, 06351

Actively Recruiting

34

The Catholic University of Korea Seoul St Marys Hospital

Seoul, South Korea, 06591

Completed

35

Kaohsiung Veterans General Hospital

Kaohsiung City, Taiwan, 813

Actively Recruiting

36

National Cheng Kung University Hospital

Tainan, Taiwan, 704

Actively Recruiting

37

National Taiwan University Hospital

Taipei, Taiwan, 100

Actively Recruiting

38

Taipei Veterans General Hospital

Taipei, Taiwan, 112

Actively Recruiting

39

Chang-Gung Memorial Hospital, LinKou Branch

Taoyuan, Taiwan, 333

Actively Recruiting

40

Maharaj Nakorn Chiang Mai hospital Faculty of Medicine

Chiang Mai, Thailand, 50200

Actively Recruiting

41

Municipal Inst. Of Dnipropetrovsk Region. Council

Dnipro, Ukraine

Completed

42

State Institute Of Phthisiology And Pulmonology N.A. F.G. Yanovskiy Of Ams Ukraine

Kyiv, Ukraine, 03680

Completed

43

Hanoi Heart Hospital

Hanoi, Vietnam

Actively Recruiting

44

Hanoi Medical University Hospital

Hanoi, Vietnam

Actively Recruiting

45

Children's Hospital 1

Ho Chi Minh City, Vietnam

Actively Recruiting

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Research Team

S

Study Contact

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NON_RANDOMIZED

Model

PARALLEL

Primary Purpose

TREATMENT

Number of Arms

3

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