Actively Recruiting

All Genders
Healthy Volunteers
NCT03932786

Studying Health Outcomes After Treatment in Patients With Retinoblastoma

Led by Vanderbilt-Ingram Cancer Center · Updated on 2025-09-19

900

Participants Needed

11

Research Sites

622 weeks

Total Duration

On this page

Sponsors

V

Vanderbilt-Ingram Cancer Center

Lead Sponsor

N

National Cancer Institute (NCI)

Collaborating Sponsor

AI-Summary

What this Trial Is About

This trial studies health outcomes after treatment in patients with retinoblastoma. Gathering health information over time from patients and family members through vision assessments, samples of tissue and saliva, and questionnaires may help doctors learn more about what causes retinoblastoma, identify long-term health outcomes for patients with retinoblastoma, and find out which therapies may be the best for treating retinoblastoma

CONDITIONS

Official Title

Studying Health Outcomes After Treatment in Patients With Retinoblastoma

Who Can Participate

All Genders
Healthy Volunteers

Eligibility Criteria

Eligible

You may qualify if you...

  • Unilateral or bilateral intraocular retinoblastoma
  • Diagnosis between the ages of 0 to 17.99 years
  • Diagnosis on or after January 1, 2008
  • No exclusions based on primary or secondary treatment modalities
  • Retrospective group patients must be  6 months post end of treatment at study entry
  • Prospective group patients must not have begun treatment
  • Patients must be able to communicate in English, French, or Spanish
  • One sibling not affected by retinoblastoma will be enrolled, preferably closest in age to the patient
  • All patients and/or their parents or legal guardians must sign a written informed consent
  • All institutional, FDA, and NCI requirements for human studies must be met
Not Eligible

You will not qualify if you...

  • Patients with diminished capacity will not be enrolled

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 11 locations

1

Lurie Children's Hospital

Chicago, Illinois, United States, 60611

Actively Recruiting

2

University of Illinois, Chicago

Chicago, Illinois, United States, 60612

Actively Recruiting

3

University of Minnesoa

Minneapolis, Minnesota, United States, 55455

Actively Recruiting

4

Washington School of Medicine at St. Louis

St Louis, Missouri, United States, 63110

Actively Recruiting

5

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States, 45229

Actively Recruiting

6

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

7

Vanderbilt-Ingram Cancer Center

Nashville, Tennessee, United States, 37232

Actively Recruiting

8

MD Anderson Cancer Center

Houston, Texas, United States, 77030

Actively Recruiting

9

Texas Childeren's Hospital

Houston, Texas, United States, 77030

Actively Recruiting

10

Children's Hospital of Wisconsin

Milwaukee, Wisconsin, United States, 53226

Actively Recruiting

11

The Hosptial for Sick Children

Toronto, Canada

Actively Recruiting

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Research Team

V

Vanderbilt-Ingram Service for Timely Access

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

2

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