Actively Recruiting
Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases
Led by Memorial Sloan Kettering Cancer Center · Updated on 2025-09-11
250
Participants Needed
1
Research Sites
363 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?
CONDITIONS
Official Title
Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease, Langerhans Cell Histiocytosis (LCH), Rosai-Dorfman Disease (RDD), or Juvenile Xanthogranuloma (JXG) for the exploratory aim
- Able to complete study assessments in English, confirmed at the time of consent
- Age 18 years or older
You will not qualify if you...
- Unwilling to sign consent to participate in the study
- Unable to complete web-based assessments
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Memorial Sloan Kettering Cancer Center
New York, New York, United States, 10065
Actively Recruiting
Research Team
E
Eli Diamond, MD
CONTACT
K
Katherine Panageas, DRPH
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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