Actively Recruiting
Swiss Pediatric Inflammatory Brain Disease Registry (Swiss-Ped-IBrainD)
Led by University of Bern · Updated on 2024-12-16
500
Participants Needed
13
Research Sites
2646 weeks
Total Duration
On this page
Sponsors
U
University of Bern
Lead Sponsor
S
Schweizerische Multiple Sklerose Gesellschaft
Collaborating Sponsor
AI-Summary
What this Trial Is About
The Swiss-Ped-IBrainD is a national patient registry that collects information on diagnosis, symptoms, treatment, and follow-up of pediatric patients with an inflammatory brain disease in Switzerland. It was first implemented in 2020 in the pediatric clinic of the university hospital in Bern. Further centers all over Switzerland opened for recruitment after that: Aarau, Basel, Bellinzona, Chur, Geneva, Lausanne, Lucerne, St. Gallen, Winterthur and Zurich. The center in Fribourg is expected open for recruitment in 2025. The registry provides data for national and international monitoring and research. It supports research on inflammatory brain diseases in Switzerland and the exchange of knowledge between clinicians, researchers, and therapists. The registry aims to improve the treatment of children with inflammatory brain diseases and optimizing their health care and quality of life.
CONDITIONS
Official Title
Swiss Pediatric Inflammatory Brain Disease Registry (Swiss-Ped-IBrainD)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients living and/or treated in Switzerland diagnosed with an inflammatory brain disease from 2005 onward
- Disease onset before the age of 18
- Written informed consent by patients and/or legal representatives
- Diagnosed with one of the following: optic neuritis, transverse myelitis, acute disseminated encephalomyelitis, multiple sclerosis, neuromyelitis optica spectrum disorders, myelin oligodendrocyte glycoprotein antibody-associated disease, anti-NMDA-R encephalitis, anti-GAD65 associated autoimmune encephalitis, anti-AMPAR-1/2 associated autoimmune encephalitis, anti-Lgi-1 associated autoimmune encephalitis, anti-CASPR-2 associated autoimmune encephalitis, anti-GABAR-1/2 associated autoimmune encephalitis, onconeuronal antibody associated autoimmune encephalitis, Hashimoto encephalopathy, CNS vasculitis, CNS sarcoidosis, CNS lupus, Rasmussen encephalitis
You will not qualify if you...
- Neurological symptoms caused by infectious diseases of the central nervous system
- Genetic or metabolic causes of central demyelinating diseases
- Neurological symptoms caused by Guillain-Barré syndrome
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 13 locations
1
Kantonsspital Aarau
Aarau, Canton of Aargau, Switzerland, 5001
Actively Recruiting
2
Children's Hospital of Eastern Switzerland
Sankt Gallen, Canton of St. Gallen, Switzerland, 9000
Actively Recruiting
3
University Children's Hospital Lausanne (CHUV)
Lausanne, Canton of Vaud, Switzerland, 1011
Actively Recruiting
4
Kantonsspital Winterthur
Winterthur, Canton of Zurich, Switzerland, 8400
Actively Recruiting
5
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
Bellinzona, Canton Ticino, Switzerland, 6500
Actively Recruiting
6
Kantonsspital Graubünden
Chur, Kanton Graubünden, Switzerland, 7000
Actively Recruiting
7
University Children's Hospital Basel, UKBB
Basel, Switzerland, 4031
Actively Recruiting
8
University Children's Hospital, Inselspital Bern
Bern, Switzerland, 3010
Actively Recruiting
9
Institute of Social and Preventive Medicine, University of Bern
Bern, Switzerland, 3012
Actively Recruiting
10
Hôpital Fribourgeois - Freiburger Spital
Fribourg, Switzerland, 1752
Not Yet Recruiting
11
University Hospitals of Geneva (HUG)
Geneva, Switzerland, 1211
Actively Recruiting
12
Kinderspital Zentralschweiz
Lucerne, Switzerland, 6000
Actively Recruiting
13
University Children's Hospital Zurich
Zurich, Switzerland, 8032
Actively Recruiting
Research Team
L
Lorena F Hulliger, MSc
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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