Actively Recruiting

All Genders
NCT03606200

Swiss Primary Ciliary Dyskinesia Registry

Led by University of Bern · Updated on 2025-11-25

800

Participants Needed

1

Research Sites

3543 weeks

Total Duration

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AI-Summary

What this Trial Is About

The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.

CONDITIONS

Official Title

Swiss Primary Ciliary Dyskinesia Registry

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patients diagnosed with primary ciliary dyskinesia
  • Signed informed consent or assent
Not Eligible

You will not qualify if you...

History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety

AI-Screening

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Trial Site Locations

Total: 1 location

1

University of Bern

Bern, Switzerland, 3012

Actively Recruiting

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Research Team

C

Claudia E Kuehni, Prof

CONTACT

M

Myrofora Goutaki, PD, MD-PhD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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