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ID03984253

Swiss Register for Monitoring Adults and Children with Severe Asthma to Improve Care and Understand Disease

Led by Prof. Dr. Jörg Leuppi · Updated on 2025-03-12

600

Participants Needed

10

Research Sites

N/A

Total Duration

AI-Summary

What this Trial Is About

Severe asthma is a chronic disease marked by airway inflammation, varying airway obstruction, and different asthma types, affecting about 5% of asthma patients globally. Asthmas prevalence and impact on quality of life have increased despite better treatments, leading to frequent severe attacks and significant healthcare costs. This research aims to establish a multi-center clinical register for patients with severe asthma in Switzerland to improve understanding and management of this condition over time. The study collects data from patients with severe asthma treated at participating centers, including pulmonologists and hospital departments. Patients will be enrolled continuously and followed for up to 15 years, with regular assessments at baseline, after four months, and yearly thereafter. Some patients receiving specific therapies like antibodies may have a reduced data set recorded, with follow-up evaluations to monitor therapy response. No additional examinations beyond routine care are required. Participants will undergo regular evaluations including symptom control tests, lung function tests such as Forced Vital Capacity and Forced Expiratory Volume, quality of life questionnaires, blood analyses, and documentation of exacerbations and healthcare utilization. Data collection focuses on understanding symptom changes, asthma control, medication adjustments, and long-term outcomes. The study involves ongoing monitoring without additional patient procedures beyond normal clinical care.

CONDITIONS

Brief Title

Swiss Severe Asthma Register

Research Team

J

Jörg Leuppi

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