Actively Recruiting
Synovial Sarcoma Registry / Biospecimen Repository
Led by Children's Hospital of Philadelphia · Updated on 2025-06-04
1000
Participants Needed
1
Research Sites
520 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
CONDITIONS
Official Title
Synovial Sarcoma Registry / Biospecimen Repository
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Males or females of any age
- Reported diagnosis of synovial sarcoma
- Informed consent from subject (aged 6518 years) or parent/guardian
You will not qualify if you...
- Individuals with sarcomas that do not fit the definition of those considered for this registry
- Individuals who are unwilling to participate
- Individuals who are unwilling or unable to provide written consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
Research Team
L
Lauren Gutstein
CONTACT
J
James Robinson
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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