Actively Recruiting
TAKINGCARE - TAcKlING the Needs of Carers of People With Chronic respirAtoRy disEases
Led by Aveiro University · Updated on 2024-12-17
250
Participants Needed
1
Research Sites
214 weeks
Total Duration
On this page
Sponsors
A
Aveiro University
Lead Sponsor
F
Fundação para a Ciência e a Tecnologia
Collaborating Sponsor
AI-Summary
What this Trial Is About
This study aims to: i) develop an instrument that assesses the needs of informal carers of people with chronic respiratory diseases (CRD), along diseases' trajectory, and evaluate its measurement properties; ii) identify existing instruments that assess the needs of informal/family carers and their measurement properties, iii) characterize the needs of informal carers of people with CRD and iv) characterize the health literacy of informal carers of people with CRD. The first task will be a systematic review. For the second and third tasks, people with CRD, their informal carers and health professionals will be recruited via the pulmonology services from the hospitals:Unidade Local de Saúde de Gaia/Espinho, Unidade Local de Saúde da Região de Aveiro, and Unidade Local de Saúde de Entre o Douro e Vouga. On task 2, a mixed-methods study will be conducted to characterize the needs of informal carers of people with CRD, as well as their health literacy. On task 3, an instrument that assesses the needs of informal carers of people with CRD will be developed and its measurement properties will be studied. This study is urgently needed to provide meaningful support to this hidden workforce who provides most of the care to people with DRC contributing to guide meaningful supportive care to this population and their loved ones.
CONDITIONS
Official Title
TAKINGCARE - TAcKlING the Needs of Carers of People With Chronic respirAtoRy disEases
Who Can Participate
Eligibility Criteria
You may qualify if you...
- People with chronic respiratory diseases aged 18 years or older
- Diagnosed with ILD, COPD, lung cancer, severe asthma, or bronchiectasis
- Fluent in Portuguese
- Identify an informal/family carer
- Informal carers of people with chronic respiratory diseases aged 18 years or older
- Informal carers fluent in Portuguese
- Health professionals fluent in Portuguese
- Health professionals in clinical practice with people with chronic respiratory diseases
You will not qualify if you...
- People with chronic respiratory diseases showing signs of cognitive impairment based on the Six-item Cognitive Impairment Test (6CIT) for interviews
- Informal carers showing signs of cognitive impairment based on the Six-item Cognitive Impairment Test (6CIT)
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
University of Aveiro
Aveiro, Portugal, 3810-193
Actively Recruiting
Research Team
A
Alda S Marques, PhD
CONTACT
O
Odete M Alves, MSc
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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