Actively Recruiting
TIRCON International NBIA Registry
Led by LMU Klinikum · Updated on 2025-06-05
2000
Participants Needed
9
Research Sites
1485 weeks
Total Duration
On this page
Sponsors
L
LMU Klinikum
Lead Sponsor
S
Seventh Framework Programme
Collaborating Sponsor
AI-Summary
What this Trial Is About
TIRCON-reg aims to * continue the provision of a global registry and natural history study for NBIA disorders * harmonize and cover existing national and single site registries * enable participation of countries and single sites that so far have no access to an NBIA registry * join forces in order to recruit sufficient numbers of patients * define the natural history of NBIA disorders * define the most appropriate outcome measures * inform the design and facilitate the conduction of clinical trials
CONDITIONS
Official Title
TIRCON International NBIA Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Suspected or confirmed diagnosis of NBIA
- Willingness to participate in the study
You will not qualify if you...
- Unwillingness to participate in the study
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 9 locations
1
Children's Hospital of Eastern Ontario, Division of Neurology, Department of Pediatrics
Ottawa, Canada, K1H 8L1
Actively Recruiting
2
Charles University, Department of neurology
Prague, Czechia, 120 00
Actively Recruiting
3
LMU Klinikum, Friedrich-Baur-Institute
Munich, Bavaria, Germany, 80336
Actively Recruiting
4
The Foundation of the Carlo Besta Neurological Institute, IRCCS
Milan, Italy, 20133
Actively Recruiting
5
University medical Center Groningen (UMCG) Department of Neurology AB 51
Groningen, Netherlands, 9700 RB
Actively Recruiting
6
The Childrens Memorial Health Institute
Warsaw, Poland, 04-730
Actively Recruiting
7
University of Belgrade, Department of Movement Disorders and Degenerative Brain Diseases
Belgrade, Serbia
Actively Recruiting
8
Hospital Vall d'Hebron - Institut de Recerca (VHIR), Pediatric Neurology, Movement Disorders
Barcelona, Spain, 08035
Active, Not Recruiting
9
Hospital Sant Joan de Déu, Universitat de Barcelona, Servei de Neurología
Barcelona, Spain, 08950
Active, Not Recruiting
Research Team
B
Boriana Büchner, Dr.
CONTACT
A
Almut Bischoff
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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