Transition to Adult Care in Epilepsy: An Observational Study to Assess Readiness and Improve Care for Young Patients

What this Trial Is About

Epilepsy is a common neurological condition in children and adolescents that often continues into adulthood, requiring a planned transition from pediatric to adult epilepsy care. This research focuses on evaluating how well patients and their caregivers are prepared for this transition, especially in those with psychiatric and neuropsychological comorbidities. The study is conducted at the IRCCS C. Mondino Institute, which follows many pediatric epilepsy patients, and aims to improve multidisciplinary care by addressing medical, psychosocial, and educational needs during the transition. The study involves a coordinated transition pathway between pediatric and adult epilepsy services. It assesses patients and caregivers using the Transition Readiness Assessment Questionnaire (TRAQ) at the last pediatric neuropsychiatric visit and again at the first adult epilepsy neurology visit. Secondary evaluations include emotional and behavioral aspects and quality of life using questionnaires such as CBCL, YSR, and PedsQoL. The goal is to develop a best-practice model for managing epilepsy patients with psychiatric comorbidities as they move to adult care. Participants will complete assessments during their final pediatric visit and first adult visit to track readiness for transition and changes in emotional-behavioral health and quality of life. Researchers will monitor these outcomes over one year, focusing on improving care continuity and therapeutic planning. This observational study helps identify appropriate follow-up structures and optimize treatment selection, supporting a smoother and more effective shift to adult epilepsy services.

Transition From Pediatric to Adult Epilepsy Care