Actively Recruiting

Age: 14Years - 20Years
All Genders
NCT06342557

Transitional ePRO Diary Liver (Transitional-ePRO)

Led by FROM- Fondazione per la Ricerca Ospedale di Bergamo- ETS · Updated on 2026-02-27

250

Participants Needed

1

Research Sites

516 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The study is part of the MACROLIVER Project, whose main objective is to create a digital tool for patients and caregivers for the management of liver disease that allows the optimization of therapy and/or the treatment process, even remotely. Such a tool not only reduces the movement of patients who are by definition fragile, but also enables the optimization of access and care by a multidisciplinary team. This tool is intended to support doctors and patients, but in no way replaces normal clinical practice. This study aims to explore the specificities of patients experiencing the transition from the pediatric ward to the adult ward in order to identify risk and protective factors that influence psychological well-being at both an individual and relational level. In order to gather all the information about the patients attending the transitional clinic and to obtain a more complete and truthful clinical-psychological picture, the study also includes the collection of retrospective data of the transplanted patients.

CONDITIONS

Official Title

Transitional ePRO Diary Liver (Transitional-ePRO)

Who Can Participate

Age: 14Years - 20Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patients aged 14 to 20 who have been transplanted or are awaiting liver transplant at the ASST-PG23 transplant center and are transitioning to adult services
  • Signed informed consent
  • Proven use of the required mobile applications in the last 2 weeks
Not Eligible

You will not qualify if you...

History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety

AI-Screening

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Trial Site Locations

Total: 1 location

1

ASST-Papa Giovanni XXIII

Bergamo, MILANO, Italy, 24127

Actively Recruiting

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Research Team

P

Pietro Giani, BS

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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Transitional ePRO Diary Liver (Transitional-ePRO) | DecenTrialz