Actively Recruiting

Phase 2
Age: 2Years +
All Genders
NCT05983159

A Trial of Targeted Therapies for Patients With Slow-Flow or Fast-Flow Vascular Malformations

Led by Murdoch Childrens Research Institute · Updated on 2026-05-05

50

Participants Needed

2

Research Sites

137 weeks

Total Duration

On this page

Sponsors

M

Murdoch Childrens Research Institute

Lead Sponsor

P

Peter MacCallum Cancer Centre, Australia

Collaborating Sponsor

AI-Summary

What this Trial Is About

Recent studies have demonstrated that growth of vascular malformations can be driven by genetic variants in one of 2 signalling pathways. Targeted drugs specific to these pathways have been developed and shown to be effective in treating cancer. This study will describe the effectiveness of (i) 48 weeks of alpelisib therapy for participants with slow-flow vascular malformations and a gene mutation in one of these signalling pathways (module 1) and (ii) 48 weeks of mirdametinib therapy for participants with fast-flow vascular malformations and a gene mutations in the other signalling pathway (module 2).

CONDITIONS

Official Title

A Trial of Targeted Therapies for Patients With Slow-Flow or Fast-Flow Vascular Malformations

Who Can Participate

Age: 2Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Age 2 years or older
  • Clinical diagnosis of slow-flow or fast-flow vascular malformation
  • Received standard therapy or standard therapy is not appropriate
  • Documented genetic mutation in the PI3K pathway for slow-flow or MAPK pathway for fast-flow malformations
  • Adequate performance status (ECOG 0-2 for adults or Lansky > 50 for children under 16)
  • Life expectancy of at least 12 weeks
  • Ability to swallow and retain oral medication
  • Adequate blood counts and organ function as specified
  • Agreement to use effective contraception if of childbearing potential
  • Signed informed consent and willingness to comply with study procedures
Not Eligible

You will not qualify if you...

  • Allergy to study drugs or their components
  • Severe infection requiring IV antibiotics within 4 weeks before enrollment
  • Major surgery within 4 weeks before enrollment
  • Prior use of the study drug class (PI3K inhibitor for alpelisib module, MEK inhibitor for mirdametinib module)
  • Pregnancy or breastfeeding
  • Diabetes requiring medication or HbA1c above 6.4% (alpelisib module)
  • Use of medications that interact with study drugs and cannot be stopped
  • History of certain lung diseases like pneumonitis
  • Significant heart disease or recent cardiac events
  • Uncontrolled high blood pressure
  • Known HIV infection
  • Certain severe skin reactions history
  • Impaired gastrointestinal function affecting drug absorption
  • Recent or current malignancies (fast-flow module)
  • Retinal or eye conditions posing risk (fast-flow module)
  • Other severe uncontrolled medical conditions contraindicating study drugs
  • Inability to understand or comply with treatment instructions

AI-Screening

AI-Powered Screening

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Trial Site Locations

Total: 2 locations

1

Peter MacCallum Cancer Centre

Parkville, Victoria, Australia, 3052

Actively Recruiting

2

The Royal Children's Hospital

Parkville, Victoria, Australia, 3052

Actively Recruiting

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Research Team

M

Michelle de Silva, PhD

CONTACT

T

Tony Penington, MBBS, FRACS

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NON_RANDOMIZED

Model

PARALLEL

Primary Purpose

TREATMENT

Number of Arms

2

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