Adapting and Testing a Turkish Sleep Screening Tool for Children and Adolescents With Complex Chronic Conditions in Pediatric Intensive Care

What this Trial Is About

Researchers are evaluating sleep disturbances in children and adolescents with complex chronic conditions CCC in a multi-phase observational study. The study aims to adapt the Sleep Screening Scale for Children and Adolescents with Complex Chronic Conditions SCAC into Turkish and test its accuracy and reliability. It also investigates how common different types of sleep problems are in these patients and how factors like diagnosis, age, sex, and other medical conditions relate to sleep issues. Additionally, the study compares sleep patterns at home and during pediatric intensive care unit PICU stays, examining environmental and medical influences on sleep quality. The study includes a first phase focused on adapting and validating the SCAC in Turkish through translation, expert review, caregiver interviews, and pilot testing. The second phase recruits children admitted to a PICU, where sleep-wake patterns are monitored continuously using actigraphy, and environmental factors such as noise and light are recorded. Clinical data including medications, pain, and disease severity are documented. After discharge, follow-up occurs at four time points up to three months using the SCAC tool and sleep diaries, with reminders and interviews conducted by a nurse researcher. Participants are involved through assessments at hospitalization and post-discharge, including questionnaires, actigraphy monitoring, environmental recordings, and sleep diaries. Researchers measure the SCACs psychometric properties, sleep disturbance prevalence, objective sleep parameters, and correlations between environmental and clinical factors with sleep efficiency and recovery. The study tracks sleep recovery over three months post-discharge, comparing hospital and home sleep patterns. This research aims to provide data that can improve hospital environments and sleep care for children with CCC.

Turkish Adaptation of a Sleep Screening Tool for Pediatric Complex Chronic Conditions