Actively Recruiting

Age: 18Years +
All Genders
NCT05718440

Uronephrological Complications Risk Factors in Spinal Dysraphism

Led by Assistance Publique - Hôpitaux de Paris · Updated on 2024-04-12

200

Participants Needed

1

Research Sites

260 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Spinal dysraphism consist of congenital malformations resulting of abnormalities in the formation of neural tube and/or surrounding structures during embryogenesis. The aim of this study is to assess if there are specific clinical and paraclinical patterns of pelvic (urinary, bowel, sexual) disorders depending on the dysraphism's type and level of injury. This description will help to determine a prognosis on symptoms and the risk of complication depending on the dysraphism's type and level of injury. It will provide targeted evaluation and cares: identifying patients who will be at risk of complications and needing acute monitoring or preventing cares on the symptoms' onset. Pelvic disorders have an important impact on morbi-mortality (urinary dysfunction is the first cause of mortality in adults by renal failure or infection) and also on patients' quality of life.

CONDITIONS

Official Title

Uronephrological Complications Risk Factors in Spinal Dysraphism

Who Can Participate

Age: 18Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Men and women over 18 years old with spinal dysraphism
  • Presence of urinary and/or bowel and/or sexual dysfunction
  • Evaluated during a one-day consultation in a neuro-urology department
  • Informed consent given by the patient or legal guardian if under protection
Not Eligible

You will not qualify if you...

  • Language barrier with inability to understand French
  • Other neurological diseases except syringomyelia, Chiari malformation, or hydrocephalus

AI-Screening

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Trial Site Locations

Total: 1 location

1

Tenon hospital

Paris, France, 75020

Actively Recruiting

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Research Team

M

Maelys Teng, MD, MSc

CONTACT

C

Claire Hentzen, MD, MSc

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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