Actively Recruiting
World Bleeding Disorders Registry
Led by World Federation of Hemophilia · Updated on 2023-08-14
20000
Participants Needed
1
Research Sites
518 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
CONDITIONS
Official Title
World Bleeding Disorders Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease
You will not qualify if you...
- none
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
World Federation of Hemophilia
Montreal, Quebec, Canada, H3G 1T7
Actively Recruiting
Research Team
D
Donna Coffin, M.Sc.
CONTACT
E
Emily Ayoub, Ph.D.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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