Understanding how your data is collected, stored, shared, and protected is a fundamental part of participating in any clinical research study. At DecenTrialz, we take privacy extremely seriously and operate in full alignment with the Health Insurance Portability and Accountability Act (HIPAA) and ISO 27001.

What Data is Collected

When you sign up on DecenTrialz and complete the pre-screening process, the platform collects certain types of data to help match you with appropriate clinical trials.

This may include:

• Basic personal details (e.g., age, gender, zip code)
• Contact information (e.g., phone, email)
• Medical history (e.g., past diagnoses, medications)
• Lifestyle or health behavior data (e.g., smoking, activity levels)
• Location preferences for trial participation
• Eligibility-specific answers to pre-screening questions

Key Note: You control what data you share. Only the minimum necessary data is collected to help match you to suitable studies.

How Data is Stored and Secured

All data entered into DecenTrialz is:

• Encrypted during transmission and at rest
• Stored securely in HIPAA-compliant servers, which are primarily located in the United States.
• Access-controlled so only authorized personnel or systems can use it

We follow industry best practices and undergo periodic security audits to ensure ongoing protection of your personal information.

What we never do:

• We never sell your data.
• We never share your name or contact without your permission.
• We never use your data for purposes unrelated to research matching.

Key Note: You can request a copy or deletion of your stored data at any time, in compliance with HIPAA and other global regulations.

Who Can See Your Data

Your data is only visible to:

• Authorized DecenTrialz support and tech teams (for matching and support purposes)
• Research sites only after you’ve matched and with your knowledge
• In some cases, a Clinical Research Organization (CRO) or sponsor, but only in de-identified or aggregated form unless you’ve explicitly consented

What is de-identified data?
This means your name, contact details, and other identifying information are removed so your data cannot be traced back to you.

Key Note: If your profile is referred to a research site, you will always be informed before any identifiable data is shared.

HIPAA Compliance Overview

HIPAA stands for the Health Insurance Portability and Accountability Act, a federal law in the United States of America that sets the standard for protecting sensitive health data.

As a HIPAA-compliant platform, DecenTrialz ensures:

• You are informed about how your data is used
• You have the right to access and control your health information
• Only authorized entities may access your identifiable data
• Your data is encrypted and securely stored

Our team is trained in HIPAA regulations, and we work only with research partners who follow similar ethical and legal standards.

Key Note: Participation in clinical trials through DecenTrialz does not affect your health insurance. HIPAA protects your data both during and after your use of our platform.