Actively Recruiting
ADPKD Patient Registry
Led by PKD Foundation · Updated on 2023-11-18
3000
Participants Needed
1
Research Sites
521 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.
CONDITIONS
Official Title
ADPKD Patient Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD)
You will not qualify if you...
- Caretakers, family members or friends of individuals with ADPKD
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
PKD Foundation
Kansas City, Missouri, United States, 64131
Actively Recruiting
Research Team
E
Elise Hoover
CONTACT
R
Registry staff
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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