Cancer Experience Registry An Online Survey Study to Understand the Experiences of Cancer Patients, Survivors, and Caregivers

What this Trial Is About

Researchers are conducting an online survey study called the Cancer Experience Registry to better understand the experiences of people affected by cancer, including patients, survivors, and caregivers. The aim is to explore the social, emotional, physical, financial, and decision-making challenges faced by these individuals. The study also seeks to inform healthcare providers, advocates, and policy makers to improve care and develop supportive programs. Participants complete surveys through a web-based platform that collects information on their psychosocial experiences and needs. The Registry is designed with input from experts, patients, and caregivers, and it allows tailored programs and services to be developed based on the collected data. The platform also links participants to cancer-related resources and provides aggregated reports to healthcare networks to enhance care quality. During the study, participants will report their quality of life over recent days through questionnaires. The research team uses this self-reported data to understand the long-term quality of life and challenges faced by people impacted by cancer. The study started in 2013 and continues to collect information, aiming to improve support services and care policies for cancer patients and their caregivers.

Cancer Experience Registry (CER) for Cancer Patients and Caregivers