Actively Recruiting
Data Collection of Patients With Rare Bone Diseases
Led by Luca Sangiorgi · Updated on 2025-11-20
1000
Participants Needed
1
Research Sites
1304 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
RD-DATA is a retrospective and prospective data collection, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different sources and evaluating several aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.
CONDITIONS
Official Title
Data Collection of Patients With Rare Bone Diseases
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients affected by rare diseases with predominantly skeletal involvement
You will not qualify if you...
- Conditions unrelated to rare diseases with predominantly skeletal involvement
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136
Actively Recruiting
Research Team
M
Marina Mordenti, PhD
CONTACT
M
Marcella Lanza, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here