Emphysema Research Registry and Genetic Testing for Adults with COPD

What this Trial Is About

Researchers are gathering detailed information from people diagnosed with emphysema and related lung conditions like chronic obstructive pulmonary disease COPD and chronic bronchitis. This observational study aims to build a research registry to better understand emphysema and support the evaluation of new treatments. The registry also helps identify potential participants for future research. DNA samples will be collected to study genetic factors linked to COPD. Participants will undergo various tests and evaluations at the EmphysemaCOPD Research Center. This includes answering respiratory questionnaires about symptoms and quality of life, performing lung function tests before and after inhaling a bronchodilator medicine called albuterol, providing blood samples for routine tests and genetic analysis, and measurements of leg muscle strength and body fat. Participants may also provide additional blood samples if they experience worsening COPD symptoms. During the study, participant information and test results will be securely stored and periodically updated. Assessments like pulmonary function, muscle strength, and body fat help researchers better understand emphysemas effects. The study allows ongoing communication with participants and maintains confidentiality by coding personal data. Participation includes informed consent, questionnaires, breathing tests, blood draws, and physical measurements, all conducted at the research center.

Emphysema Research Registry and Biosample Repository