Actively Recruiting
ETMR One: An International Registry and Research Platform for Children With Embryonal Tumor With Multilayer Rosettes
Led by Hackensack Meridian Health · Updated on 2025-06-04
100
Participants Needed
1
Research Sites
521 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This research is being done to find out more information about a brain tumor called Embryonal Tumor with Multilayer Rosettes (ETMR) by collecting medical information from children who have this disease. The purpose of this research study is to create and maintain a research database for patients with ETMR. The database will include information about occurrence rates, patient information, tumor tissue information, and response to treatment. This will help advance our understanding of this rare disease. In addition, this study will include obtaining survival data and evaluating therapeutic response to expert consensus therapy, and procuring patient tumor tissue.
CONDITIONS
Official Title
ETMR One: An International Registry and Research Platform for Children With Embryonal Tumor With Multilayer Rosettes
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients of any age
- Patients must have a histologically confirmed primary intracranial CNS Embryonal Tumor with Multilayer Rosettes confirmed by central or local pathology review
- Patients with tumor tissue showing C19MC amplification are eligible without central review
- Patients may be enrolled at any time following diagnosis
You will not qualify if you...
- None specified
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hackensack University Medical Center
Hackensack, New Jersey, United States, 07601
Actively Recruiting
Research Team
D
Derek Hanson, MD
CONTACT
K
Kellie Daniel, BA
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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