Evaluation of a Digital Education and Self-Management Program for Adults with Fibrotic Interstitial Lung Disease during Pulmonary Rehabilitation and Outpatient Care

What this Trial Is About

Researchers are evaluating a new digital education and self-management program designed for people with fibrotic interstitial lung diseases FILD. This observational study aims to see if the program is practical, acceptable, and helpful during inpatient pulmonary rehabilitation and outpatient ILD care. The study also looks at whether patients who use the program show changes in health-related outcomes compared to those who received usual care before the program was introduced. The program includes multiple web-based e-learning modules tailored to individual patient needs. Patients can access the program on smartphones, tablets, or computers during inpatient rehabilitation or outpatient clinic visits. They can discuss the program content with healthcare professionals during routine therapy sessions or follow-up appointments. Participants retain access to the digital resources after discharge, and reminders encourage ongoing engagement. Participants will complete questionnaires about their experience and health outcomes, including self-efficacy, quality of life, exercise capacity, symptoms, psychological well-being, oxygen use, rehospitalization, and survival. The study collects data over a 3 to 6 month follow-up period to assess how acceptable and feasible the program is, along with its potential impact on health. This will guide planning for a future larger trial. The study started in October 2025 and is sponsored by Insel Gruppe AG, University Hospital Bern.

Evaluation of the Pulmonary Fibrosis Learning and Self-management Programme (FILIP)