Actively Recruiting
Evaluation of the Pulmonary Fibrosis Learning and Self-management Programme (FILIP)
Led by Insel Gruppe AG, University Hospital Bern · Updated on 2026-03-09
80
Participants Needed
2
Research Sites
94 weeks
Total Duration
On this page
Sponsors
I
Insel Gruppe AG, University Hospital Bern
Lead Sponsor
U
University of Zurich
Collaborating Sponsor
AI-Summary
What this Trial Is About
The goal of this observational study is to evaluate the feasibility and acceptability of a newly developed digital education and self-management program for people with fibrotic interstitial lung diseases (FILD) during inpatient pulmonary rehabilitation and outpatient interstitial lung disease (ILD) care. The study also explores whether participation in the program is associated with changes in health-related outcomes. The main questions this study aims to answer are: * Is the digital education and self-management program acceptable, useful, and practical for patients with FILD? * Is it feasible to recruit and retain patients and to collect outcome data for a future larger effectiveness study? * Do patients who participate in the program show differences in health-related outcomes compared with patients treated before the program was implemented? Patients who consent to participate during the implementation phase will be offered access to the digital education and self-management program. Their outcomes will be compared with those of a historical cohort of patients who received usual care before the program was introduced. Participants will: * Use a web-based digital education and self-management program with multiple e-learning modules tailored to individual needs and preferences * Access the program via smartphone, tablet, or computer during inpatient rehabilitation or outpatient care * Discuss questions related to the program content with healthcare professionals during routine rehabilitation sessions or clinic visits * Complete questionnaires about their experience with the program and their health-related outcomes
CONDITIONS
Official Title
Evaluation of the Pulmonary Fibrosis Learning and Self-management Programme (FILIP)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of fibrotic interstitial lung disease (FILD) as main reason for pulmonary rehabilitation (Berner Reha Zentrum only)
- Enrollment in Idiopathic Interstitial Pneumonia (IIP) cohort study and consent to use data for research (Inselspital only)
- Age 18 years or older
- Provided written informed consent
You will not qualify if you...
- Cognitive inability or insufficient German language skills to understand consent or study procedures
- Diagnosis of sarcoidosis
AI-Screening
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Trial Site Locations
Total: 2 locations
1
Department for Pulmonary Medicine, Allergology and Clinical Immunology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland
Bern, Switzerland, 3010
Not Yet Recruiting
2
Center for Rehabilitation & Sports Medicine Inselspital and Berner Reha Zentrum, Bern University Hospital, University of Bern, Switzerland
Heiligenschwendi, Switzerland, 3625
Actively Recruiting
Research Team
T
Thimo Marcin, PhD
CONTACT
T
Thomas Franz Riegler, PhD
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
1
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