Actively Recruiting
InsightRP2 Registry
Led by University of Göttingen · Updated on 2025-05-21
200
Participants Needed
1
Research Sites
1043 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
InsightRP2 is a secure online patient registry specific to RP2-associated retinitis pigmentosa (RP). It is our goal to further the scientific understanding of this rare disease and to support research in to a gene therapy for RP2-associated RP. We collect medical, genetic and imaging data from people affected by RP2-associated RP and will coduct a natural history study as well as image analysis studies.
CONDITIONS
Official Title
InsightRP2 Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- A molecular genetic diagnosis involving a heterozygous or hemizygous variant in RP2 is required
- Written informed consent to participate must be provided
- Patients of all ages meeting the above criteria may participate
- Participants must be able to navigate registry documentation in English or German
You will not qualify if you...
- Patients with evidence of non-RP2 molecular genetic diagnoses are excluded
- Data collection and analysis require consent from the patient or legal guardian
- Patients unable to navigate registry documentation in English or German are excluded
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University Medicine Göttingen
Göttingen, Lower Saxony, Germany, 37073
Actively Recruiting
Research Team
N
Nina Bögershausen, MD
CONTACT
B
Bernd Wollnik, MD, Prof.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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