Aincourt

Researchers are studying how people with neuromuscular diseases sit in their wheelchairs, focusing on posture, pain, and pressure sores that can come from sitting. Neuromuscular diseases affect muscles or their nerve connections, causing difficulties with movement, breathing, and heart function, often requiring wheelchair use. Since there is no standard way to position patients in wheelchairs, this study aims to describe sitting posture, related pain, and evaluate how well recommended wheelchair equipment works over time. The study involves assessing wheelchair posture and related pain using validated tools such as the Measurement of Postural Control in Seated Postural Control Measure for Adults 2.0 and pain scales like the Simple Verbal Scale or Visual Analog Scale. Participants are evaluated during initial consultations and then again a few months later to see if the prescribed wheelchair accessories improve their sitting posture and comfort. This research could help develop guidelines for better wheelchair positioning in people with neuromuscular diseases. Participants will be assessed at the start and end of the study period, averaging about six months, to describe postural wheelchair disorders. Evaluations include posture measurements, pain assessments, and monitoring of pressure ulcers related to sitting. The study collects detailed data during consultations and follow-ups to understand the effectiveness of interventions and improve care strategies for wheelchair users with neuromuscular conditions.