Kenmore

Researchers are studying how multiple sclerosis (MS) progresses and changes over time in patients who use complementary and alternative medicine (CAM). The study will look at symptoms, quality of life, diet, lifestyle habits, and the occurrence of any side effects. It will also identify individuals with the best quality of life and least disease activity, called positive deviants, and compare their medication, diet, and lifestyle patterns with others to understand factors linked to less disease progression and better quality of life. This is an observational study where participants with MS who use CAM will be followed over time without receiving any experimental treatments. The study does not involve any interventions but monitors participants' natural patterns of CAM use and other health-related behaviors. Participants will complete surveys every six months for five years to provide information about their CAM use, symptoms, quality of life, diet, and lifestyle. Researchers will analyze these responses to understand CAM therapies and their association with MS disease progression and quality of life. Ongoing monitoring helps capture long-term trends and any adverse events during the study period.

Researchers are studying people with Parkinson's disease and related disorders to find factors linked to better quality of life, fewer symptoms, and slower disease progression. This observational study aims to identify medication, diet, and lifestyle habits among individuals who experience minimal disease activity and high quality of life. The study focuses on describing disease progression, symptom changes, and lifestyle patterns over time. Participants will complete online surveys every six months for five years. Each survey takes about one to one and a half hours and includes questions on health, well-being, and dietary intake. Surveys are sent by email, and reminders may be provided if participants delay responses. The study does not provide medical care, and participants are encouraged to continue consulting their healthcare providers. Throughout the study, participants will fill out the CAM Care in PD survey and a dietary intake survey to report on their Parkinson's symptoms and overall health. Researchers will use the collected information to measure patient-reported outcomes and quality of life over the five-year period. Participation includes ongoing monitoring through questionnaires but no direct treatment or interventions.