Actively Recruiting
MPS (RaDiCo Cohort) (RaDiCo-MPS)
Led by Institut National de la Santé Et de la Recherche Médicale, France · Updated on 2026-02-11
1000
Participants Needed
23
Research Sites
466 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this observational study is to characterize the epidemiology and natural history of MPS diseases by building a retrospective and prospective collection of extensive phenotypic data from French MPS patients.
CONDITIONS
Official Title
MPS (RaDiCo Cohort) (RaDiCo-MPS)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Confirmed diagnosis of MPS based on clinically relevant enzyme deficiency, with abnormally elevated GAG urinary excretion and/or identification of pathogenic mutations
- Signed informed consent or parents/guardian non-opposition for deceased patients (minor or protected major)
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 23 locations
1
Centre Hospitalier Universitaire d'Angers
Angers, France
Actively Recruiting
2
Hôpital des Enfants - Groupe Hospitalier Pellegrin
Bordeaux, France
Not Yet Recruiting
3
Hôpital Morvan
Brest, France
Actively Recruiting
4
Hôpital d'Estaing
Clermont-Ferrand, France
Not Yet Recruiting
5
Hôpital Beaujon
Clichy, France
Actively Recruiting
6
Hôpital Raymond-Poincaré
Garches, France
Not Yet Recruiting
7
Hôpital Jeanne de Flandre
Lille, France
Actively Recruiting
8
Hôpital de la Timone
Marseille, France
Actively Recruiting
9
Hôpital Gui de Chauliac
Montpellier, France
Actively Recruiting
10
Hôpital Brabois
Nancy, France
Actively Recruiting
11
Hôpital Armand Trousseau
Paris, France
Actively Recruiting
12
Hôpital de la Croix Saint-Simon
Paris, France
Not Yet Recruiting
13
Hôpital de la Pitié-Salpêtrière
Paris, France
Actively Recruiting
14
Hôpital Necker-Enfants Malades
Paris, France
Actively Recruiting
15
Hôpital Robert Debré
Paris, France
Actively Recruiting
16
Centre Hospitalier de Pau
Pau, France
Actively Recruiting
17
American Memorial Hospital
Reims, France
Not Yet Recruiting
18
Hôpital Pontchaillou
Rennes, France
Actively Recruiting
19
Hôpital Charles Nicolle
Rouen, France
Not Yet Recruiting
20
Hôpital de Hautepierre
Strasbourg, France
Not Yet Recruiting
21
Clinique Monié
Toulouse, France
Not Yet Recruiting
22
Hôpital des Enfants
Toulouse, France
Not Yet Recruiting
23
Hôpital Clocheville
Tours, France
Actively Recruiting
Research Team
B
Bénédicte HERON
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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