Actively Recruiting

All Genders
NCT05755451

Natural History of SMA

Led by Fondazione Policlinico Universitario Agostino Gemelli IRCCS · Updated on 2023-03-06

1200

Participants Needed

5

Research Sites

810 weeks

Total Duration

On this page

Sponsors

F

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Lead Sponsor

U

University of Milan

Collaborating Sponsor

AI-Summary

What this Trial Is About

This is an investigator initiated observational study with the aim to record several aspects of function, care and adverse events in a large cohort of SMA patients followed longitudinally by using a structured academic disease registry.

CONDITIONS

Official Title

Natural History of SMA

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • All patients with spinal muscular atrophy
Not Eligible

You will not qualify if you...

  • Participation in other clinical trials

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 5 locations

1

Istituto Gaslini

Genova, Italy

Actively Recruiting

2

Nemo Sud

Messina, Italy

Actively Recruiting

3

Centro Clinico nemo

Milan, Italy

Actively Recruiting

4

Ospedale Bambino gesu

Rome, Italy

Actively Recruiting

5

Policlinico gemelli

Rome, Italy

Actively Recruiting

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Research Team

E

Eugenio Mercuri, MD

CONTACT

M

Marika Pane, MD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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Natural History of SMA | DecenTrialz