Ohio State University Registry for Multiple Myeloma and Amyloidosis Patients Tracking Treatments, Outcomes, and Support in Ohio

What this Trial Is About

Researchers are studying patients with plasma cell diseases, including Multiple Myeloma and AL Amyloidosis, to improve their quality and length of life. They have created a database with patient information, blood samples, and bone marrow tissue to track treatments, their effectiveness, patient well-being, complications, remission duration, and overall survival. The study is observational and aims to support patients through information and clinical team access, as well as to develop better treatments. The study includes tissue banking, where samples are collected at diagnosis, during routine follow-up, or at relapse. This helps create a resource for research to understand these diseases better. The project covers surveillance, contact, and research, offering patients support and education about their condition and clinical trials. Participants will be contacted and followed over time to collect data on their treatments and health status. Researchers will monitor outcomes such as treatment responses and survival, while also providing information and support. The study aims to build a valuable resource for future research to reduce illness and death from these plasma cell disorders, with ongoing observation expected for up to three years.

Ohio State University Multiple Myeloma and Amyloidosis Data Registry and Sample Resource