Exploring Parents Experiences After Child Loss During Pregnancy or Birth Developing Care Recommendations Through Participatory Research

What this Trial Is About

Researchers are exploring the experiences of parents who have lost a child during pregnancy or birth. This study aims to develop treatment recommendations for healthcare professionals on how to support these parents. It follows a participatory and co-creative design, involving affected parents as part of the research team to ensure their voices guide the process. The study includes several steps first, workshops and focus groups will be held to identify the main needs of parents after child loss. Then, narrative interviews will be conducted to gain a deeper understanding of these experiences. Finally, the findings will be summarized and translated into practical treatment recommendations for healthcare professionals using a Delphi approach. Participants will share their experiences and needs during pregnancy and up to seven days after birth. Data will be collected through interviews and group discussions. The researchers will analyze this information to understand parents perspectives and develop supportive care guidelines. The study involves voluntary participation and focuses on parents who have experienced child loss within the past 12 months, lasting until December 2026.

Parents' Experience of Child Loss During Pregnancy or Birth