What this Trial Is About

This research aims to understand the experiences of parents who have lost a child during pregnancy or birth. It focuses on gathering insights to develop treatment recommendations for healthcare professionals to better support these parents. The study uses a participatory approach, involving parents who have experienced stillbirth and fetal death as part of the research team. The study follows a multistep mixed-method design. First, workshops and focus groups are held to identify the main needs of affected parents. Then, narrative interviews are conducted to gain a deeper understanding of their experiences before and during the loss. Finally, a Delphi approach is used with parents to translate the findings into treatment recommendations and refine them through consensus. Participants will engage in these activities over the course of the study. Researchers will evaluate parents' experiences during pregnancy and up to seven days after birth. The study collects qualitative data through interviews and group discussions and involves parents in reviewing and confirming the treatment recommendations. This approach aims to ensure that the outcomes are sensitive to parents' needs and experiences.

Parents' Experience of Child Loss During Pregnancy or Birth