Needs of parents during their intrauterine or perinatal child loss - a qualitative multi-method study.
Julian Siepmann, Lydia Bauernfeind, Daniela Nuber-Fischer...
https://pubmed.ncbi.nlm.nih.gov/42121131Actively Recruiting
Led by Fritz Sterr · Updated on 2025-01-13
50
Participants Needed
1
Research Sites
52 weeks
Total Duration
Researchers are exploring the experiences of parents who have lost a child during pregnancy or birth. This study aims to develop treatment recommendations for healthcare professionals on how to support these parents. It follows a participatory and co-creative design, involving affected parents as part of the research team to ensure their voices guide the process. The study includes several steps: first, workshops and focus groups will be held to identify the main needs of parents after child loss. Then, narrative interviews will be conducted to gain a deeper understanding of these experiences. Finally, the findings will be summarized and translated into practical treatment recommendations for healthcare professionals using a Delphi approach. Participants will share their experiences and needs during pregnancy and up to seven days after birth. Data will be collected through interviews and group discussions. The researchers will analyze this information to understand parents' perspectives and develop supportive care guidelines. The study involves voluntary participation and focuses on parents who have experienced child loss within the past 12 months, lasting until December 2026.
CONDITIONS
Parents' Experience of Child Loss During Pregnancy or Birth
You may qualify if you...
You will not qualify if you...
Complete this quick 3-step screening to check your eligibility
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 screening and enrollment visit
Duration - Several weeks depending on scheduling
Participants take part in workshops and focus group interviews to discuss their needs and experiences related to child loss during pregnancy or birth.
1 to 2 visits for workshops and focus groups
Duration - Up to 1 month
Participants engage in narrative interviews to provide an in-depth understanding of their lived experience before and during child loss.
1 in-person interview visit
Duration - Several weeks
Participants contribute to the Delphi process to help translate findings into treatment recommendations for healthcare professionals.
1 to 2 online or in-person sessions
Total: 1 location
1
Deggendorf Institute of Technology, Faculty of Applied Healthcare Sciences
Deggendorf, Bavaria, Germany, 94469
Actively Recruiting
F
Fritz Sterr, M.Sc.
J
Julian Siepmann, M.Sc.
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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Julian Siepmann, Lydia Bauernfeind, Daniela Nuber-Fischer...
https://pubmed.ncbi.nlm.nih.gov/42121131