Actively Recruiting
Rare AutoImmune SElf-management Programme Development
Led by University of the West of England · Updated on 2024-10-15
360
Participants Needed
1
Research Sites
78 weeks
Total Duration
On this page
Sponsors
U
University of the West of England
Lead Sponsor
U
University of Leeds
Collaborating Sponsor
AI-Summary
What this Trial Is About
The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.
CONDITIONS
Official Title
Rare AutoImmune SElf-management Programme Development
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of a rare rheumatic condition made by hospital doctor or secondary care, including lupus, systemic vasculitis, myositis, or Sjogren syndrome (participant self-report)
- Ability to give informed consent (with translation support if needed)
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of the West of England/ Bristol Royal Infirmary
Bristol, United Kingdom, BS2 8HW
Actively Recruiting
Research Team
D
Dr J Robson
CONTACT
J
Jen Orme
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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