Evaluating the Jeroen Pit Huis Transitional Care Unit for Children with Medical Complexity and Their Families to Support Hospital to Home Transitions

What this Trial Is About

Researchers are evaluating an innovative pediatric transitional care unit called the Jeroen Pit Huis JPH to support children with medical complexities CMC as they transition from hospital to home. The study aims to see if an intermediate stay at the JPH affects healthcare use and improves outcomes for patients and their families compared to going home directly from the hospital. This is an observational, multicenter study enrolling children from newborn to 18 years old who have chronic complex conditions and require specialized care after discharge but are not yet ready to go home due to medical or family reasons. The JPH offers private, home-like apartments near the hospital where families can stay while learning to manage their childs care with help from a team of nurses, psychosocial workers, counselors, and pediatricians. One parent stays with the child 247 during this period. The study compares families who use the JPH with those who go directly home after hospital discharge from various medical centers. No experimental treatments are given, as the JPH is standard care in this setting. Participants and their parents will complete questionnaires at discharge, 3 months, and 12 months to measure parental distress, quality of life, growth, family functioning, employment impact, anxiety, depression, sleep, PTSD, and satisfaction with care. Healthcare use such as hospital stays and emergency visits will also be tracked over 12 months. The study requires about 2.5 hours total for questionnaire completion, with minimal risk. This will help understand how an intermediate care unit like the JPH affects outcomes for children with complex medical needs and their families.

Bridging Hospital to Home for Children with Medical Complexity and Their Families