Actively Recruiting
Bridging Hospital to Home for Children with Medical Complexity and Their Families
Led by Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA) · Updated on 2024-09-19
150
Participants Needed
1
Research Sites
130 weeks
Total Duration
On this page
Sponsors
A
Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)
Lead Sponsor
Z
ZonMw: The Netherlands Organisation for Health Research and Development
Collaborating Sponsor
AI-Summary
What this Trial Is About
The goal of this observational study is to evaluate an innovative pediatric transitional care unit called the Jeroen Pit Huis (JPH). The primary objective of our study is to investigate whether an intermediate stay between hospital and home in the JPH have a favourable effect on healthcare consumption, patient, parent and family-relevant quantitative outcome measures, compared to discharge directly from a hospital ward. Parents will be asked to complete several questionnaires on three different time points (at discharge, 3 and 12 months of follow up).
CONDITIONS
Official Title
Bridging Hospital to Home for Children with Medical Complexity and Their Families
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age at term (older than 37 weeks corrected gestational age) and younger than 18 years
- Admitted to hospital with a chronic complex condition (CCC) or expected continuous dependence on technology after discharge
- Expected need for specialized medical and/or allied health care after discharge
- Medically stable condition and/or set treatment regimen
- Not yet ready for discharge home due to care, organization, or family circumstances
- Provided informed consent to participate
You will not qualify if you...
- Need for end-of-life care
- Predominantly social or family issues without serious medical problems in the child
- Behavioral or psychiatric problems requiring other care types
- Need for rehabilitation medical care
- Not discharged directly home from hospital (except via JPH or similar transitional care)
- Contagious disease requiring strict isolation
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Amsterdam University Medical Centre
Amsterdam, Netherlands
Actively Recruiting
Research Team
H
Heleen N Haspels, Msc
CONTACT
C
Clara Van Karnebeek, Prof. Dr.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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