Actively Recruiting

Phase 2
Age: 18Years - 55Years
All Genders
Healthy Volunteers
ID05231798

Cholinergic Integrity in Down Syndrome in Association With Aging, Alzheimer's Disease Pathology, and Cognition

Led by Vanderbilt University Medical Center · Updated on 2026-05-19

30

Participants Needed

1

Research Sites

N/A

Total Duration

On this page

Sponsors

V

Vanderbilt University Medical Center

Lead Sponsor

V

Vanderbilt Kennedy Center

Collaborating Sponsor

AI-Summary

What this Trial Is About

Researchers are studying how age-related cognitive decline in adults with Down syndrome (DS) is linked to changes in the brain's cholinergic system, which is important for attention, learning, and memory. This study focuses on understanding these changes in relation to Alzheimer's disease (AD) pathology and cognitive performance. The goal is to identify early markers of dementia risk in DS and to support future treatments that target cholinergic function alongside other AD therapies. Participants will undergo various tests to measure cholinergic integrity, including brain scans with a special radiotracer ([18F]-FEOBV) used in PET imaging, structural MRI to assess brain regions, and EEG during rest and tasks. Adults with DS aged 18 to 55 will take part, including some from an existing cohort. The study uses these molecular, functional, and structural biomarkers to track changes associated with aging and AD in DS. Throughout the study, participants will have imaging scans, EEG recordings, and cognitive assessments to evaluate brain function and behavior. Researchers will analyze the correlation between radiotracer uptake and brain volume as the primary outcome. The study lasts about three years, with measures taken to ensure participant safety and monitoring cognitive changes over time to better understand the progression of AD in individuals with DS.

CONDITIONS

Brief Title

Cholinergic Integrity in Down Syndrome in Association With Aging, Alzheimer's Disease Pathology, and Cognition

Who Can Participate

Age: 18Years - 55Years
All Genders
Healthy Volunteers

Eligibility Criteria

Eligible

You may qualify if you...

  • Diagnosis of Down syndrome, including mosaic or partial trisomy 21
  • Signed informed consent and assent if needed, with a legally authorized representative
  • Willingness to comply with all study procedures and availability for the study duration
  • Male or female aged 18 to 55 inclusive
  • In good general health with no diagnosis of dementia
  • Stable dose of permitted CNS-active medications for at least 4 weeks
  • Adequate vision and hearing for neuropsychological testing
  • Negative pregnancy test for females who are not surgically sterile or post-menopausal
  • Mental age of 4 years or greater based on Kaufman Brief Intelligence Test, 2nd Edition
  • English as first or native language
  • Reliable study partner able to provide clinical symptom information
Not Eligible

You will not qualify if you...

  • Any significant or unstable medical condition affecting neuropsychological testing
  • Contraindications to MRI such as pacemaker, metallic fragments near eyes or spinal cord, or cochlear implants
  • Inability to complete MRI and PET procedures
  • IQ less than 40 as assessed by Kaufman Brief Intelligence Test, 2nd Edition
  • Pregnancy or breastfeeding
  • History of malignant disease within last 5 years except certain skin or in situ cancers
  • Clinically significant abnormalities in B12 or thyroid tests not resolved by follow-up
  • Abnormal screening laboratory tests
  • Blood clotting or bleeding disorders if undergoing CSF collection
  • Considered ineligible by site principal investigator
  • Clinical diagnosis of dementia
  • Concurrent participation in other clinical trials or longitudinal studies with overlapping measures

AI-Screening

AI-Powered Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Treatment

Duration - One-time procedures during the study period

Participants receive an injection of an [18F]-FEOBV radiotracer followed by PET scans, MRI scans, and EEG assessments to evaluate cholinergic integrity and Alzheimer's disease pathology.

1 to 2 visits for imaging and EEG assessments

Follow-up

Duration - Up to 3 years

Participants are monitored for changes in cognitive and neurobehavioral performance related to cholinergic system integrity and Alzheimer's disease biomarkers.

Periodic follow-up assessments as scheduled

Trial Site Locations

Total: 1 location

1

Vanderbilt University Medical Center Clinical Research Center

Nashville, Tennessee, United States, 37212

Actively Recruiting

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Research Team

A

Amy Boegel, Ph.D.

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

OTHER

Number of Arms

1

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