Actively Recruiting
Center for Inherited Muscle Research Neuromuscular Research Biobank
Led by Virginia Commonwealth University · Updated on 2025-07-04
500
Participants Needed
1
Research Sites
4 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Researchers are creating a biobank to collect, store, and share tissue samples from people with all types of neuromuscular diseases. This observational study gathers medical information about participants and their families, focusing on neurological disorders. The study aims to support future research by providing access to donated biological materials and associated medical data. Participants may provide various samples including blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA, and RNA. Medical histories are collected from both affected individuals and healthy volunteers. Before any procedures, participants review and sign an informed consent form and have the opportunity to ask questions. During the study, researchers collect and store donated tissues and medical history information. No identifying details about family members are recorded. Participants may be asked about their general knowledge of neurological conditions. The primary goal is to maintain a resource for future studies involving neuromuscular diseases, with participation possible from newborns through age 75.
CONDITIONS
Brief Title
CIMR Neuromuscular Research Biobank
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Willing and able to give informed consent
- Positive diagnosis or suspected diagnosis of neuromuscular disease
- Family history of neuromuscular disease
- Healthy volunteer
- Age newborn to 75 years
You will not qualify if you...
- Unwilling to sign consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - Ongoing as per participant availability
Participants provide biological samples such as blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA, and/or RNA for research purposes.
1 or more visits depending on sample types provided
Duration - Up to study completion date (February 2030)
Participants’ medical history and general knowledge related to neurological disorders are collected and shared with researchers.
Visits as needed for data collection
Trial Site Locations
Total: 1 location
1
Virginia Commonwealth University
Richmond, Virginia, United States, 23298
Actively Recruiting
Research Team
N
Nicholas Johnson
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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