Neuromuscular Disease Research Biobank at Virginia Commonwealth University Collecting Tissue Samples and Medical Information

What this Trial Is About

Researchers are collecting and storing tissue samples from people with all types of neuromuscular diseases to support future research. This observational study also includes healthy volunteers and aims to gather medical information and family history related to neurological disorders. The research is conducted by Virginia Commonwealth University, focusing on improving understanding of neuromuscular conditions. Participants may provide various biological samples including blood, skin cells, urine, saliva, fecal matter, muscle tissue, DNA, and RNA. The study involves collecting medical history and general knowledge about neurological disorders without identifying family members. All procedures begin after a thorough informed consent process. During the study, participants will share medical and family information and may donate tissue samples. Researchers will use this information and samples to support future studies on neuromuscular diseases. The study includes safety and privacy measures, and participation lasts until 2030. Participants can expect clear communication and opportunities to ask questions before joining.

CIMR Neuromuscular Research Biobank