Creation of a De-identified EEG and Medical Records Database for Adults with Epilepsy Treated at UNMH Comprehensive Epilepsy Center

What this Trial Is About

Researchers are creating a pilot database called the UNMH EEG Corpus, which includes EEG recordings and de-identified medical records from patients referred within the UNMH Comprehensive Epilepsy Center. This unique database will link pre-treatment neurobiomarkers to post-treatment outcomes, aiding in seizure localization and the development of seizure forecasting algorithms. The study focuses on patients with epilepsy, status epilepticus, or seizures who have undergone EEG and treatment with follow-up assessments. The database will be built retrospectively, collecting data from patients aged 18 years and older, starting from records as early as August 8, 2007, and continuing until 2027. Data includes demographic details, EEG recordings, clinical notes, neuroimaging reports, and medication histories, all de-identified to remove personal information. Data storage uses secure, password-protected systems, and the EEG data is organized using EEG-BIDS file format to standardize and protect information. Participants are not directly involved as this is a retrospective observational study using existing data. Researchers will extract and de-identify clinical and EEG data, organizing it for analysis. The primary measurement is the development of the UNMH EEG Corpus covering data from 2007 to 2027. Data privacy and security are emphasized throughout, and the study will continue until 2030 with ongoing data additions and quality checks.

De-identified UNMH EEG Corpus Database Creation With Fully De-identified Clinical Information