Study on the Impact of COVID-19 on the Well-being of Adolescent and Young Adult Cancer Patients and Survivors Ages 18 to 39

What this Trial Is About

Researchers are studying how the COVID-19 pandemic has affected the psychological, financial, physical, and social well-being of adolescent and young adult AYA cancer patients and survivors. This group has worse long-term survival compared to the general population, and the pandemics impact may be even greater for them. The study aims to understand COVID-19 specific psychological distress in AYA cancer survivors to help develop targeted ways to improve their health and quality of life. Participants complete an online survey lasting 20 to 30 minutes at the start of the study. The survey covers COVID-19 related psychological distress, health care use, health behaviors, social and financial disruptions, health-related quality of life, social support, stress management, and perceived positive effects during stressful times. Participants may be contacted again at 6 months and 1 year to repeat the survey and track changes. During the study, participants provide self-reported information through surveys at baseline, 6 months, and 12 months. Researchers measure COVID-19 specific psychological stress and related factors over time. The study collects patient-reported outcomes and tracks changes in survey responses to understand how the pandemic has influenced their well-being. This ongoing monitoring helps assess the impact of COVID-19 on AYA cancer survivors.

The Effect of COVID-19 Pandemic on Adolescent and Young Adult Cancer Patients and Survivors