Actively Recruiting
The Global Angelman Syndrome Registry
Led by Foundation for Angelman Syndrome Therapeutics, Australia · Updated on 2024-02-23
5000
Participants Needed
1
Research Sites
4344 weeks
Total Duration
On this page
Sponsors
F
Foundation for Angelman Syndrome Therapeutics, Australia
Lead Sponsor
Q
Queensland University of Technology
Collaborating Sponsor
AI-Summary
What this Trial Is About
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.
CONDITIONS
Official Title
The Global Angelman Syndrome Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of Angelman Syndrome
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Queensland University of Technology
Brisbane, Queensland, Australia, 4000
Actively Recruiting
Research Team
M
Megan Tones, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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