Actively Recruiting
HRQoL and Financial Toxicity in Patients With VEXAS Syndrome
Led by Gruppo Italiano Malattie EMatologiche dell'Adulto · Updated on 2025-07-15
100
Participants Needed
17
Research Sites
44 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This multicenter cross-sectional observational study aims to describe health-related quality of life (HRQoL) and symptom profiles of patients with VEXAS syndrome.
CONDITIONS
Official Title
HRQoL and Financial Toxicity in Patients With VEXAS Syndrome
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adults aged 18 years or older with confirmed VEXAS syndrome by UBA1 pathogenic mutation
- Able and willing to provide written informed consent
You will not qualify if you...
- Having any psychiatric disorder or major cognitive dysfunction
- Unable to read and understand the local language
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 17 locations
1
Aou Ospedali Riuniti "Umberto I - G.M. Lancisi - G. Salesi"- Ancona - Sod Clinica Ematologica
Ancona, Italy
Actively Recruiting
2
Asst Papa Giovanni Xxiii - Ospedale Di Bergamo - Sc Ematologia
Bergamo, Italy
Actively Recruiting
3
Aou Di Bologna - Policlinico S. Orsola-Malpighi - Uoc Ematologia
Bologna, Italy
Actively Recruiting
4
Asst Degli Spedali Civili Di Brescia - Uo Ematologia
Brescia, Italy
Actively Recruiting
5
Istituto Di Candiolo - Fondazione Del Piemonte Per L'Oncologia - Irccs - Centro Trapianti
Candiolo, Italy
Actively Recruiting
6
Aou Careggi - Firenze - Sod Ematologia
Florence, Italy
Actively Recruiting
7
Fondazione Irccs Ca' Granda, Ospedale Maggiore Policlinico - Milano - Ematologia - Padiglione Marcora
Milan, Italy
Actively Recruiting
8
Irccs Ospedale S. Raffaele - Milano - Uo Oncoematologia
Milan, Italy
Actively Recruiting
9
Aou Federico Ii - Napoli - Uoc Ematologia
Naples, Italy
Actively Recruiting
10
Aou Di Padova - Uo Ematologia
Padova, Italy
Actively Recruiting
11
Fondazione Ircss Policlinico San Matteo - Pavia - Uo Ematologia
Pavia, Italy
Actively Recruiting
12
Ausl Di Reggio Emilia - Arcispedale Santa Maria Nuova, Irccs - Sc Ematologia
Reggio Emilia, Italy
Actively Recruiting
13
Aou Policlinico Tor Vergata - Roma - Uoc Trapianto Cellule Staminali
Roma, Italy
Actively Recruiting
14
Ististuto Clinico Humanitas - Rozzano - Uo Oncologia Medica Ed Ematologia
Rozzano, Italy
Actively Recruiting
15
Ente Ecclesiastico Casa Sollievo Della Sofferenza - San Giovanni Rotondo - Ematologia
San Giovanni Rotondo, Italy
Not Yet Recruiting
16
Ospedale Mauriziano Umberto I - Torino - Scdu Ematologia
Torino, Italy
Actively Recruiting
17
Aou Integrata Di Verona, Policlinico G.B. Rossi - Uoc Ematologia
Verona, Italy
Actively Recruiting
Research Team
F
Fabio Efficace
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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