Actively Recruiting
Improving Congenital Heart Disease Care
Led by University of California, San Francisco · Updated on 2026-01-23
1000
Participants Needed
1
Research Sites
155 weeks
Total Duration
On this page
Sponsors
U
University of California, San Francisco
Lead Sponsor
N
National Heart, Lung, and Blood Institute (NHLBI)
Collaborating Sponsor
AI-Summary
What this Trial Is About
The theory-informed digital health intervention, called as "Empower My Congenital Health (EmpowerMyCH)" aims to activate and engage ACHD patients in building confidence toward navigating the adult healthcare system. This tool is built after incorporating the theories of behavior change, gathering inputs from target patients in all stages of its design and implementation. The key features of the tool include a digital medical passport, updated congenital information, community support, and patient stories and advice. The investigators aim to test the acceptability, feasibility, efficacy, and effectiveness of the intervention.
CONDITIONS
Official Title
Improving Congenital Heart Disease Care
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Have congenital heart disease
- Are 18 years or older
- Are able to sign the informed consent
You will not qualify if you...
- Are developmentally delayed
- Are unable to consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of California, San Francisco
San Francisco, California, United States, 94117
Actively Recruiting
Research Team
A
Anushree Agarwal, MBBS, MAS
CONTACT
S
Sedona L Koenders, MS
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
1
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