Actively Recruiting
Neurofibromatosis (NF) Registry Portal
Led by The Children's Tumor Foundation · Updated on 2023-08-30
20000
Participants Needed
1
Research Sites
1982 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
CONDITIONS
Official Title
Neurofibromatosis (NF) Registry Portal
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosed with NF1
- Diagnosed with NF2
- Diagnosed with Schwannomatosis
You will not qualify if you...
- Failure to complete account registration
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Children's Tumor Fundation
New York, New York, United States, 10017
Actively Recruiting
Research Team
K
Kate Kelts, B.S.N.
CONTACT
A
Annette Bakker, Ph.D.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
3
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here