Actively Recruiting
Observing People With Desmoid-Type Fibromatosis
Led by Memorial Sloan Kettering Cancer Center · Updated on 2025-05-16
100
Participants Needed
1
Research Sites
313 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The purpose of this study is to closely observe people with desmoid-type fibromatosis over 1 months.
CONDITIONS
Official Title
Observing People With Desmoid-Type Fibromatosis
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Clinical diagnosis of desmoid fibromatosis, either new or newly recurrent, including sporadic and FAP-associated disease
- At least 18 years of age
- Able to undergo cross-sectional imaging by MRI or CT with intravenous contrast
- Disease detectable on imaging with target lesion measuring 1 cm or larger
- Eligible for active observation management as assessed by primary MSK care provider
- Willing and able to sign informed consent
You will not qualify if you...
- Symptomatic desmoid fibromatosis requiring narcotic pain control, causing intestinal fistulization, or needing inpatient admission within 3 months before enrollment
- Intraabdominal desmoids larger than 7 cm or within 1 cm of central mesenteric vessels, or tumors in the head and neck
- KPS performance status 70 or lower if limited due to tumor; low KPS from other conditions without tumor symptoms is allowed
- Under 18 years old
- Strict contraindications to both MRI and CT with intravenous contrast (except patients needing pre-medication for contrast reactions)
- Unable to provide reliable informed consent
- Currently receiving systemic treatment for desmoid fibromatosis
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
Memorial Sloan Kettering Cancer Center
New York, New York, United States, 10065
Actively Recruiting
Research Team
A
Aimee M Crago, MD, PhD
CONTACT
M
Meera Hameed, MBBS
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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