Actively Recruiting

Age: 12Years +
All Genders
ID06945887

Treatment of Desmoid Fibromatosis With Arterial Embolization: Retrospective and Prospective Observational Study

Led by Istituto Ortopedico Rizzoli · Updated on 2025-09-12

20

Participants Needed

1

Research Sites

52 weeks

Total Duration

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AI-Summary

What this Trial Is About

Desmoid fibromatoses are rare, locally aggressive tumors affecting the connective tissue. This research investigates the use of arterial embolization without chemotherapy as a treatment option. Prior studies have shown promising results with chemoembolization, but this study focuses on embolization using particles alone, based on positive outcomes reported for musculoskeletal tumors. Surgery is often avoided due to high recurrence rates and increased tumor aggressiveness, making non-surgical options important to explore. The treatment involves identifying and catheterizing the arteries supplying the tumor, then injecting embolizing material called hydrogel microspheres to block blood flow to the tumor. This procedure is followed by imaging to confirm that over 90% of the abnormal blood vessels have been closed. The study includes patients who have already undergone embolization since January 2023 as well as new patients scheduled for this treatment. Participants will be monitored for up to one year to assess pain reduction, decreased use of pain medication, and tumor size reduction. Quality of life will also be evaluated using specialized questionnaires. The study involves clinical and imaging assessments, including MRI and CT scans, to track tumor activity and treatment effects. Safety measures exclude patients with certain infections, blood disorders, or those unable to undergo MRI scans.

CONDITIONS

Brief Title

Treatment of Desmoid Fibromatosis With Arterial Embolization

Who Can Participate

Age: 12Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patients of both sexes aged 12 years and older
  • Symptomatic and actively growing desmoid fibromatosis
  • Not eligible for surgery or cryoablation
  • Patients who have had embolization for desmoid fibromatosis since 01/01/2023 or are newly listed for this treatment
  • Signed informed consent to participate in the study
Not Eligible

You will not qualify if you...

  • Life expectancy less than 3 months or severely impaired functional status (ASA 4)
  • Desmoid fibromatosis not currently active as confirmed by clinical and imaging tests (MRI, CT)
  • Blood clotting deficiencies or low platelet count disorders
  • Active infections
  • Unable to undergo MRI examination

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Treatment

Duration - Single procedure with follow-up assessments over 1 year

Participants undergo arterial embolization therapy involving injection of embolizing material to block blood supply to the tumor.

1 treatment visit and multiple follow-up visits over 1 year

Long-term Monitoring

Duration - 1 year

Participants are monitored over 1 year to assess pain reduction, medication use, tumor volume, and quality of life improvements.

Periodic visits during the year following treatment

Trial Site Locations

Total: 1 location

1

Istituto Ortopedico Rizzoli

Bologna, BO, Italy, 40136

Actively Recruiting

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Research Team

G

Giancarlo Facchini, Medicine and Surgery

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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