Actively Recruiting
Your Scoliosis Journey: A Survey for Patients Treated for Scoliosis and Their Families
Led by Mayo Clinic · Updated on 2026-01-02
5000
Participants Needed
1
Research Sites
2 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Researchers are conducting a survey study to understand the factors influencing treatment decisions for Adolescent Idiopathic Scoliosis (AIS), such as choosing observation, bracing, or surgery. The goal is to develop a shared decision-making tool to help families better understand these treatment options and improve clinical discussions about AIS care. Participants will complete surveys about their experiences and decision-making processes related to AIS treatment. This observational study does not involve experimental treatments but focuses on gathering information from patients and their families who have been treated for scoliosis. During the study, participants will complete the survey at baseline, with follow-up approximately three years later to track the number of completed surveys. The research team will analyze the collected responses to create a decision aid tool. Participation involves providing feedback through surveys without additional medical procedures or treatments.
CONDITIONS
Brief Title
Scoliosis Survey to Development Treatment Decision Tool
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Subject (and/or parent of subject) who has previously been treated for Adolescent Idiopathic Scoliosis (AIS)
You will not qualify if you...
- Age less than or equal to 12 years
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person or remote)
Duration - Baseline and approximately 3 years later
Participants complete surveys about their experiences with scoliosis treatment to help develop a decision-making tool.
2 survey completions (remote)
Trial Site Locations
Total: 1 location
1
Mayo Clinic
Rochester, Minnesota, United States, 55905
Actively Recruiting
Research Team
D
Damian Paulson
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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