The South London Stroke Register Observational Study Tracking Stroke Outcomes and Care Using ICD-11 Definition

What this Trial Is About

Researchers are conducting the South London Stroke Register SLSR, an ongoing observational study tracking stroke patients in a defined area of South London since 1995. The study aims to understand stroke incidence using the updated WHO ICD-11 definition from April 2022, and to examine long-term outcomes for stroke survivors, including mortality, recurrence, daily living activities, quality of life, and mental health. This research supports stroke survivors and stakeholders by providing detailed data on stroke impacts and care over time. The study includes two participant groups those registered before April 2022 with strokes defined by ICD-10, followed up at 3 months, 1 year, and then at 5, 10, and 15 years and those registered after April 2022 with strokes defined by ICD-11, followed up at 3 months and annually up to 5 years. Participants complete interviews or questionnaires covering stroke details, cognitive and mental health, and quality of life. No clinical or radiological procedures are performed as part of the study. Participants are identified through hospital and clinic records across eight hospitals serving the study area. Follow-up interviews occur at specified intervals, lasting about 40 minutes and can be done in person, by phone, or by mail. Researchers collect data on stroke outcomes, recurrence, and use of care services. The study runs through December 2026, with ongoing monitoring of stroke incidence, mortality, and functional status using standardized scales. Participants may withdraw at any time without penalty, and the study keeps data confidential and minimizes participant burden.

The South London Stroke Register: Improving the Lives of Stroke Survivors With Data