Actively Recruiting
Swiss Registry for Neuromuscular Disorders
Led by University of Bern · Updated on 2026-01-15
2000
Participants Needed
19
Research Sites
2741 weeks
Total Duration
On this page
Sponsors
U
University of Bern
Lead Sponsor
U
University Children's Hospital Basel
Collaborating Sponsor
AI-Summary
What this Trial Is About
The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.
CONDITIONS
Official Title
Swiss Registry for Neuromuscular Disorders
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Children, adolescents and adults diagnosed with a NMD
- Living in or treated for a NMD in Switzerland
- Provided informed consent to participate
You will not qualify if you...
- None if diagnosis is confirmed by genetic testing, biopsy, or electroneuromyography according to international standards
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 19 locations
1
Cantonal Hospital Aarau
Aarau, Canton of Aargau, Switzerland
Actively Recruiting
2
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
Bellinzona, Canton Ticino, Switzerland
Actively Recruiting
3
Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
Lugano, Canton Ticino, Switzerland
Actively Recruiting
4
University Hospital Lausanne CHUV, Children's Hospital
Lausanne, Vaude, Switzerland
Actively Recruiting
5
University Hospital Lausanne CHUV
Lausanne, Vaude, Switzerland
Actively Recruiting
6
University Children's Hospital Basel
Basel, Switzerland
Actively Recruiting
7
University Hospital Basel
Basel, Switzerland
Actively Recruiting
8
Inselspital Bern, Children's Hospital
Bern, Switzerland
Actively Recruiting
9
Inselspital Bern
Bern, Switzerland
Actively Recruiting
10
Institute of Social and Preventive Medicine (ISPM), University of Bern
Bern, Switzerland
Actively Recruiting
11
University Hospitals of Geneva, Children's Hospital
Geneva, Switzerland
Actively Recruiting
12
University Hospitals of Geneva
Geneva, Switzerland
Actively Recruiting
13
Cantonal Hospital of Lucerne LUKS
Lucerne, Switzerland
Actively Recruiting
14
Cantonal Hospital of Lucerne, LUKS
Lucerne, Switzerland
Actively Recruiting
15
Private Practice Alpenquai
Lucerne, Switzerland
Actively Recruiting
16
Cantonal Hospital of Eastern Switzerland
Sankt Gallen, Switzerland
Actively Recruiting
17
Children's Hospital of Eastern Switzerland
Sankt Gallen, Switzerland
Actively Recruiting
18
University Hospital Zuerich, Children's Hospital
Zurich, Switzerland
Actively Recruiting
19
University Hospital Zuerich
Zurich, Switzerland
Actively Recruiting
Research Team
C
Claudia E Kuehni, Prof. MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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