Actively Recruiting
Telecare Psychosocial and Cognitive Program for Children and Adolescents with Limb-Girdle Muscular Dystrophy
Led by University of Deusto · Updated on 2026-07-17
30
Participants Needed
1
Research Sites
21 weeks
Total Duration
AI-Summary
What this Trial Is About
Researchers are evaluating a telecare-mediated psychosocial and cognitive intervention designed for children and adolescents aged 7 to 17 with limb-girdle muscular dystrophy. This study aims to test whether a group-based program can improve quality of life and reduce psychological symptoms by addressing social cognition, emotional management, cognitive restructuring, relaxation, social skills, and coping strategies. Participants in the intervention group will join a neuro-psychosocial teleassistance program consisting of 12 weekly group sessions, each lasting one hour, with groups of five participants. There is also a waiting list control group for comparison. The program is delivered via videoconferences and focuses on improving social and emotional abilities through structured activities. During the study, participants will be assessed on social cognition measures such as emotion recognition and theory of mind three months after the intervention. Additional evaluations include health-related quality of life, depression, medical fear, psychopathology, and behavioral difficulties. Participants will use their own computers with internet access for sessions, and the study aims to monitor changes and improvements over time.
CONDITIONS
Brief Title
Telecare Psychosocial and Cognitive Intervention for Children and Adolescents With Limb-Girdle Muscular Dystrophy
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