Status:
RECRUITING
ALS/MND Natural History Study Data Repository
Lead Sponsor:
Massachusetts General Hospital
Collaborating Sponsors:
Henry Ford Health System
Northwestern University
Conditions:
ALS
PLS
Eligibility:
All Genders
18-90 years
Brief Summary
This is a data repository for multi-site multi-protocol clinic-based Natural History Study of ALS and Other Motor Neuron Disorders (MND). All people living with ALS or other MNDs who attend clinics a...
Detailed Description
Most people with ALS or MND who are seen clinically by the PI or PI designees at participating sites will be recruited into this study. This well-established framework provides an opportunity to offer...
Eligibility Criteria
Inclusion
- A clinical diagnosis of El Escorial of suspected, possible, probable, or definite ALS or
- Other motor neuron disorders, including but not limited to Spinal-Bulbar Muscular Atrophy (SBMA, Kennedy's disease), Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis (PLS), Progressive Muscular Atrophy (PMA), and Progressive Bulbar Palsy (PBP)
Exclusion
- Disease does not meet criteria for any motor neuron disorder
Key Trial Info
Start Date :
April 1 2015
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 31 2030
Estimated Enrollment :
5000 Patients enrolled
Trial Details
Trial ID
NCT05966038
Start Date
April 1 2015
End Date
December 31 2030
Last Update
November 14 2025
Active Locations (16)
Enter a location and click search to find clinical trials sorted by distance.
1
Loma Linda University Health
Loma Linda, California, United States, 92354
2
Kaiser Permanente
Los Angeles, California, United States, 90027
3
University of Florida
Gainesville, Florida, United States, 32610
4
Northwestern University
Chicago, Illinois, United States, 60611