BostonGene-Integrated Genomic Registry Study

What this Trial Is About

This research aims to create a detailed database combining genetic, molecular, and clinical information from patients with various cancers. The goal is to identify genetic and molecular markers that could help improve future treatments and outcomes across different cancer types. The study recognizes that current research is limited by the lack of linked genetic and clinical data and seeks to address this gap through a comprehensive registry. Participants will have their clinical and pathological data collected, including detailed genetic information from their tumor biopsies. This data will be securely stored in an electronic registry. The study does not require additional scans or procedures; instead, it gathers existing diagnostic and treatment information. Follow-up data will be collected over time by contacting participants or their doctors periodically for up to 15 years. Throughout the study, researchers will review the associations between genetic findings and patient outcomes at intervals up to five years. They will also assess predictive probabilities and how patients may match to clinical trials. Participants can expect regular data collection about their cancer diagnosis, treatments, and outcomes without undergoing extra procedures, with their information securely maintained for long-term study.

BostonGene-Integrated Genomic Registry (BIGR)