Actively Recruiting
Bronchiectasis and Nontuberculosis Mycobacteria (NTM) Research Registry
Led by COPD Foundation · Updated on 2022-03-22
5000
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
The Bronchiectasis Research Registry collects information from patients with non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) across many clinical centers. It aims to support collaborative research and help plan future clinical trials for these lung diseases, which are progressive and currently incurable. The registry also provides insights into the different types of Bronchiectasis and how the disease develops. Participants include adults over 18 with non-CF Bronchiectasis, with or without NTM, and those with NTM only. This observational registry gathers data from these patient groups to better understand their conditions. There are no study treatments; instead, the focus is on collecting and analyzing patient information over time. Participants will contribute by allowing researchers to collect clinical data about their condition. The main outcome is patient recruitment and data analysis through December 2050. There are no interventions, but ongoing data collection helps researchers study disease characteristics and patient outcomes. Participation may involve sharing medical history and other information to support research.
CONDITIONS
Brief Title
Bronchiectasis and NTM Research Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Over the age of 18
- Diagnosis of non-cystic fibrosis (non-CF) Bronchiectasis
- Diagnosis of Nontuberculosis Mycobacteria (NTM)
You will not qualify if you...
- Under the age of 18
- Diagnosis of cystic fibrosis (CF) Bronchiectasis
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - Up to several years
Participants with non-CF Bronchiectasis and/or Nontuberculosis Mycobacteria (NTM) are observed over time to collect data for research purposes.
Periodic visits depending on clinical needs
Trial Site Locations
Total: 1 location
1
COPD Foundation
Washington D.C., District of Columbia, United States
Actively Recruiting
Research Team
D
Delia Prieto
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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