Brain Health Support Program for Teens with Childhood-Onset Lupus Aged 13-18

What this Trial Is About

Researchers are developing and testing a new program to support brain health in children and youth aged 13 to 18 with childhood-onset lupus cSLE. The project uses a patient-informed approach to design an intervention tailored to the specific brain health needs of these young patients, focusing on improving quality of life and cognitive function. The intervention being studied is the Lupus Teen Online Problem Solving program, a 10-session telehealth program delivered one-on-one with a therapist. This program offers training in problem-solving, emotion regulation, and communication skills, adapted from a similar program originally created for families affected by traumatic brain injury. The study will assess how practical and acceptable this program is for participants. Participants will be involved for about one year, during which researchers will track recruitment, session attendance, and intervention completion. They will also collect ratings and feedback on the programs acceptability and feasibility shortly after the intervention. Additional assessments will measure depressive and anxiety symptoms, executive function, self-efficacy, social engagement, medication adherence, and health-related quality of life at the start and after 10 weeks of the intervention.

Complete Cognitive Intervention for cSLE